In case you missed it, Sarah Jane and Patrick B. Donohue were on The TODAY Show talking about The Sarah Jane Brain Foundation. What you may not know is Good Morning America put John Travolta on to compete against Sarah Jane.
Well, Sarah Jane won: 4.1 million impressions (3.58 HH Rating) versus 3.5 million impressions (3.05 HH Rating). Not bad for a 3 year old! If you missed the segment, you can watch it here:
The response to The TODAY Show has been amazing! We now have over 35 children and their families who have agreed to participate in the first Open Source medical database of its kind in the world (see press release below). We are compiling a medical database of Pediatric Acquired Brain Injuries (children under 25 who sustained a brain injury due to traumatic and non-traumatic causes after birth). If you know any parent of a child who suffers from a Pediatric Acquired Brain Injury, please ask them to review our efforts and contact me.
Causes of Pediatric Acquired Brain Injuries:
Traumatic: motor vehicle accidents, war blast injuries (i.e., under 25 year old Iraq/Afghanistan Veterans), sports-related injuries, assaults (Shaken Baby Syndrome/child abuse), falls
Non-traumatic: strokes, brain tumors, infections, poisoning, hypoxia, ischemia or substance abuse
P.S. If John Travolta would like a rematch, I would be more than happy to go toe-to-toe with him on Dancing With The Stars with the winner-take-all for our favorite charity (you know what my favorite charity is: The Sarah Jane Brain Foundation).
His agent can call me anytime!
Patrick B. Donohue, Esq.
Founder, The Sarah Jane Brain Foundation
181 Broadway – Suite 300
New York, NY 10007
Families Respond To The TODAY SHOW
The Sarah Jane Brain Foundation Establishing First Open Source Medical Database In The World For PABI
New York, NY – The Sarah Jane Brain Foundation, a non-profit organization whose mission is to assist in the research of new developments for children suffering from pediatric acquired brain injury (PABI) and the rehabilitation of these children, today announced over 35 children and their families have agreed to participate in the first Open Source Medical Database in the world. Sarah Jane Donohue and The Sarah Jane Brain Foundation were featured on The TODAY Show last Friday, November 14, 2008 (you can view the segment at www.TheBrainProject.org). Patrick Donohue stated, “The response to The TODAY Show has been truly amazing! We have received hundreds of emails, postings and donations from all over the world. Parents understand the need to join forces for their children and the medical community is greatly appreciative of this collaborative process.” Patrick Donohue is the Founder of The Sarah Jane Brain Foundation and father of Sarah Jane Donohue.
Dr. Keith Yeates said, “The Sarah Jane Brain Foundation’s Open Source Initiative will transform and revolutionize the field of pediatric acquired brain injury.” Dr. Yeates is the Director of the Division of Psychology and Department of Pediatrics at Ohio State University and the Chief of the Department of Psychology at Nationwide Children’s Hospital in Columbus, Ohio. Dr. Yeates serves on The National Advisory Board of The Sarah Jane Brain Foundation.
Dr. Christopher Giza said, “Researchers from all over the world will be drawn to The Sarah Jane Brain Foundation’s Open Source Initiative which will undoubtedly lead to future discoveries and breakthroughs.” Dr. Giza is the Associate Professor of Pediatric Neurology and Neurosurgery at the UCLA Brain Injury Research Center and Mattel Children’s Hospital. Dr. Giza serves on The National Advisory Board of The Sarah Jane Brain Foundation.
Dr. Gillian Hotz said, “This project will encourage more hope, more answers and more resources for children and their families who are suffering from the leading cause of death and disability for children.” Dr. Hotz is the Associate Research Professor at the Division of Trauma and Surgical Critical Care at the University of Miami’s Miller School of Medicine and Dewitt Daughtry Family Department of Surgery. Dr. Hotz serves on The National Advisory Board of The Sarah Jane Brain Foundation.
CHILDREN WHO ARE PARTICIPATING IN THE OPEN SOURCE INITIATIVE
Pediatric Traumatic Brain Injury (PTBI) is the leading cause of death and disability for children under 15 years of age in the United States resulting in over 5,000 deaths and over 17,000 permanent disabilities each year. PTBI includes all brain injuries caused by trauma including falls, motor vehicle (MV) accidents, being struck by an object, violence/assault, sports incidents, gunshot wounds and non-MV bicycle accidents. In addition, since the adult brains aren’t considered developed until age 24 or 25, many of the military veterans returning from Iraq and Afghanistan with TBI are actually considered PTBI. PABI includes all traumatic causes plus brain injuries caused by brain tumors, strokes, meningitis, insufficient oxygen, poisoning, ischemia as well as substance abuse.
The Open Source Initiative uses open source principles for the first time in medical history to assist in the study and rehabilitation of children suffering from PABI. In other words, we are making available the complete medical and therapy records and information for each one of the children participating to doctors, researchers, other parents and caregivers, therapists, students and the general public. By sharing all of this information and not putting any restrictions on its use, we are creating a portal of information for everyone involved in the field of neuroscience and neurorehabilitation. This will be a secure and anonymous location where parents can share medical and therapy data while researchers, doctors and other professionals can review the data, share thoughts, explore theories and report findings in an open forum. In order to maximize the potential development of our children, we are using the same open source principles adopted by GNU.
To learn more about The Sarah Jane Brain Foundation or for more information about each child, please visit the website www.TheBrainProject.org or contact Adam Alonso or Denise Baum at (212) 201-0599.