Published: September 03, 2008
Video: Grammy Award Winner LeAnn Rimes Urges Psoriasis Sufferers to 'Stop Hiding' and 'Start Living'
NEW YORK, Sept. 3 /PRNewswire/ -- Many of the nearly seven million
Americans living with psoriasis may be faced with physical, emotional or
social challenges as they struggle with public stigmas and misperceptions of
this painful, chronic immune disorder that affects the skin. Today marks the
launch of a nationwide awareness campaign, "Stop Hiding from Psoriasis," led
by Grammy Award-winning artist and psoriasis sufferer, LeAnn Rimes, who is
working with the American Academy of Dermatology (Academy) and National
Psoriasis Foundation to raise awareness of psoriasis and encourage sufferers
to talk to their dermatologist about the impact of the disease.
To view the Multimedia News Release, go to:
http://www.prnewswire.com/mnr/stophiding/34769/
LeAnn knows first-hand the physical and emotional pain of psoriasis.
"Having battled severe psoriasis my whole life, I have gone to great lengths
to hide my condition, especially as a performer. Over the years, I've had to
deal with the emotional and physical toll psoriasis has had on my self-esteem
and confidence, but today I no longer let psoriasis define who I am or how I
feel about myself. I hope by joining this effort and sharing my story, others
will be empowered to stop hiding from their psoriasis and better manage their
disease and not let it limit them or their aspirations."
Why is there a need for a psoriasis campaign?
Psoriasis has long been a misunderstood disease. A Psoriasis Foundation
survey found that at least half of the patients surveyed feel their psoriasis
leads others to stare or think the condition is contagious. In fact, this is
the reality of psoriasis:
* Psoriasis is a non-contagious, sometimes painful, chronic immune
disorder, resulting in unexpected flare-ups of itchy, red patches of
skin called "plaques" that may crack and bleed.
* Recent research suggests that severe psoriasis may occur with other
medical conditions such as cardiovascular disease, obesity and
diabetes.
* Up to 30 percent of people with psoriasis may develop psoriatic
arthritis, a chronic condition that typically combines skin lesions
with a progressive form of arthritis affecting the joints.
Another recent survey of the general public found that awareness about
psoriasis and its impact is very low. Almost half of American adults surveyed
admitted that they are uncomfortable around those with psoriasis, particularly
in close settings like restaurant service or shaking hands in a meeting,
suggesting that the misperception of psoriasis as a contagious disease is very
strong.
In particular, the survey found that:
* Most people (86%) say they've heard of psoriasis, but nearly half (48%)
say they are not very or not at all familiar with the disease.
* More than half (57%) of adults become uncomfortable when they are being
waited on in a restaurant by a server who has psoriasis, and half may
be uncomfortable accepting a date with a person who has psoriasis.
* If diagnosed with psoriasis, 82% feel they would be uncomfortable
wearing clothes that would expose their skin, and 80% felt they would
be uncomfortable being intimate with others.
"Based on these findings, our task is to not only educate psoriasis
sufferers and the public about the significant physical impact of the disease,
but perhaps more importantly, to clarify some of the misconceptions that drive
the painful emotional burden for patients," said dermatologist Mark Lebwohl,
MD, Chairman, National Psoriasis Foundation Medical Board.
How will this campaign help elevate awareness of psoriasis?
To address the needs of the psoriasis community, the Academy and the
Foundation, funded with support from the global health care company Abbott,
joined forces to create the campaign, "Stop Hiding from Psoriasis." This
educational effort is meant not only to encourage people suffering from
psoriasis to see a dermatologist to better manage their disease, but also to
educate the general public about psoriasis and dispel common misperceptions
attached to the disease.
"Currently, there is no cure for psoriasis. Because psoriasis can be
debilitating physically, mentally, and emotionally, it's extremely important
for sufferers to establish a relationship with a dermatologist and initiate an
ongoing discussion about their overall health -- including how their psoriasis
may impact their health both physically and emotionally," said dermatologist
David M. Pariser, M.D., President-Elect, American Academy of Dermatology.
"Together, psoriasis patients and their dermatologists can determine an
appropriate plan to manage their disease. There's no reason for people to hide
and suffer alone."
Learning More About Psoriasis
Psoriasis affects nearly seven million people in the U.S. The chronic,
non-contagious immune disorder speeds the growth cycle of skin cells and
results in thick, scaly areas of skin. While psoriasis can occur in people of
all ages, it typically appears in patients between the ages of 15 and 35, and
currently has no cure. The most common form, called plaque psoriasis, appears
as red, raised areas of skin covered with flaky white scales that may itch or
burn.
Psoriasis most commonly appears on the scalp, knees, elbows and torso,
though it can develop anywhere on the skin. It may even occur on the
fingernails and toenails. In addition to its physical symptoms, psoriasis also
may affect one's life, potentially leading to poor self image. Some patients
experience social isolation, and depression -- from dealing with the
misperception that psoriasis is contagious to worrying about how to hide
symptoms. Social interactions -- from initiating a friendship to starting a
relationship -- may become more challenging when living with psoriasis.
For more information about psoriasis, visit StopHiding.org, a new Web site
with information about psoriasis and additional background on the effort to
raise awareness by encouraging psoriasis sufferers to "stop hiding" and "start
living."
About the American Academy of Dermatology
The American Academy of Dermatology (Academy), founded in 1938, is the
largest, most influential, and most representative of all dermatologic
associations. With a membership of more than 15,000 physicians worldwide, the
Academy is committed to: advancing the diagnosis and medical, surgical and
cosmetic treatment of the skin, hair and nails; advocating high standards in
clinical practice, education, and research in dermatology; and supporting and
enhancing patient care for a lifetime of healthier skin, hair and nails. For
more information, contact the Academy at 1-888-462-DERM (3376) or www.aad.org.
About the National Psoriasis Foundation
The National Psoriasis Foundation is the world's largest non-profit
organization dedicated to serving people with psoriasis and psoriatic
arthritis. Through education and advocacy, the Foundation promotes awareness
and understanding, ensures access to treatment and supports research that will
lead to effective management and a cure. For more information, please call the
Psoriasis Foundation, headquartered inPortland, Oregon, at 800.723.9166, or
visit www.psoriasis.org.
About the Campaign Surveys
The National Psoriasis Foundation conducts survey panels twice each year
to understand the experiences and opinions of people with psoriasis. These
surveys help the Foundation gain awareness and document the impact of this
disease. Each survey sample consists of more than 400 psoriasis and psoriatic
arthritis patients. Approximately two-in-three respondents reported having
moderate-to-severe psoriasis.
As part of the Stop Hiding campaign, Abbott also conducted a detailed
survey of American consumers to assess awareness, knowledge and attitudes
about psoriasis. The online survey, conducted in June 2008, was directed to
1,000 adults aged 18 to 65, in a sample representative of the U.S. population
based on U.S. Census Bureau indicators.
Editors' Note: Photos are available via the Associated Press Photo Network
and on the Internet at Feature Photo Service's link through
http://www.newscom.com
Contact:
Jessica Donnelly
Edelman
312-240-2886
jessica.donnelly@edelman.com
SOURCE American Academy of Dermatology; National Psoriasis Foundation
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